Sabky, Purnell N. of Dedham, age 3, December 28, 2019. Born in Boston on April 23, 2016. Beloved son of Sam and Taylor Sabky. Loving brother to younger sister Hayley. Cherished grandson of William and Mary Beth Numann, and Hafid and Janice Sabky. Adored nephew of Jamal, Rebecca, Aimahd, and Tabitha.
Purnell was the most gentle soul. He loved music, Donald Duck, silly sounds, reading stories, and being surrounded by his loved ones. His life was short but his legacy is a mighty one. At 13 months, Purnell was diagnosed with Niemann Pick Type A, a rare and fatal genetic disease with no cure. In his short life, Purnell inspired tens of thousands of people to take action to fight rare disease. He raised over $750,000 for research advancements, helped facilitate treatment options at lightning speed, and blazed trails as the first patient to ever receive treatments for his rare disease. A true warrior, he lived beyond expectations before rejoining heaven.
He brought out the best in people from all corners of the world, teaching us to appreciate the smallest things, face uncertainty with courage and never give up. His life was short but full of love, meaning and accomplishment; and his impact will be lasting.
A visitation will be held at the P.E. Murray - F.J. Higgins, George F. Doherty & Sons Funeral Home 2000 Centre St., West Roxbury, MA on Friday, January 3 from 4-8pm. A Funeral Mass will be held at Holy Name Church 1689 Centre St., West Roxbury, MA on Saturday, January 4 at 1:30pm (Please go directly to the church). Reception to follow. Relatives, friends and all supporters of Nell kindly invited. Interment private.
In lieu of flowers, gifts may be made to Wylder Nation Foundation online at https://wyldernation.org/donate/ or by mail at Wylder Nation Foundation, 8924 E Pinnacle Peak Road, Ste. G5-574, Scottsdale, AZ 85255.